Share Your Data on the NSRR

The National Sleep Research Resource (NSRR) is an NHLBI-funded resource designed to host and share data from major sleep cohort studies and clinical trials. We welcome contributions from researchers in sleep medicine and related disciplines. The NSRR provides all data cost-free to incoming users who complete an online data request. Any and all data - retrospective and prospective - are welcome on the NSRR.

All shared study data must be de-identified using the HIPAA Safe Harbor method and must adhere to the data sharing language stated in the participant informed consent. Records and files from participants who did not consent to data sharing must be redacted before submitting to the NSRR.

The NSRR creates a unique space to share and link covariate data, complex physiological data, and quantitative signal (e.g. EEG, ECG) processing results. The NSRR team will guide you through the process of preparing and uploading your datasets to the NSRR.

Uploading data to the NSRR satisfies requirements of the NIH Data Sharing Policy. For future grants, please consider including data sharing language that mentions the NSRR.

What you will do:

  • Compile documentation (e.g. manuals, questionnaires) about your data
  • Prepare final datasets with data dictionaries and descriptions
  • Remove all identifiers from dataset and raw data files
  • Upload files to NSRR through Secure File Transfer Protocol (SFTP)

What we will do:

  • Assist you during each step of the submission process
  • Review uploaded data to ensure all identifiers have been removed
  • Establish an institutional data use agreement (if needed)
  • Ensure that only the users you want to access your data receive access
  • Create a repository for your dataset to organize documentation and data files
  • Write a blog post to advertise your dataset
  • Provide periodic updates on usage of your dataset

To begin the data submission process, please submit this form. An NSRR representative will contact you within two business days.

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