The National Sleep Research Resource (NSRR; sleepdata.org) is an NHLBI-funded resource designed to host and share data. The National Sleep Research Resource offers free access to large collections of de-identified physiological signals and clinical data elements collected in well-characterized research cohorts and clinical trials. We welcome contributions from researchers in sleep medicine and related disciplines. The NSRR provides all data cost-free to incoming users who complete an online data request. Any and all data - retrospective and prospective - are welcome on the NSRR. The NSRR creates a unique space to share and link covariate data, complex physiological data, and quantitative signal (e.g. EEG, ECG) processing results. For an overview of the NSRR data sharing process, please visit our Share data page.
All shared study data must be de-identified using the HIPAA Safe Harbor method and must adhere to the data sharing language stated in the participant informed consent. Records and files from participants who did not consent to data sharing must be redacted before submitting to the NSRR. Uploading data to the NSRR satisfies requirements of the NIH Data Sharing Policy.
The NSRR platform is currently housed on the Discovery Informatics Platform for Research provided by Research Information Science & Computing (RISC) at the Brigham and Women’s Hospital. The downloadable data on the NSRR website is housed on dedicated Research Interactive Storage systems. Data security is addressed at multiple levels. The NSRR infrastructure is encrypted using end-to-end SSL encryption, and the NSRR servers, database, and files are stored in the physically secure Mass General Brigham Research Computing data center. Access to the resources is controlled by per-dataset-access control, and access is only granted to individuals who have completed the web-based Data Access and Use Agreement (DAUA). Each DAUA submission is reviewed by the NSRR Review Committee, and reviewers ascertain that use of data appears appropriate with the intention of data collected and that there is a commitment to keep the data stored securely by the end-user. NSRR DAUAs expire 3 years from the date access is granted and can be renewed by either submitting a new request for data access or by requesting an extension of the agreement in writing to the NSRR Review Committee.